Parents & families

Eating Disorders in Children and Young People: A Guide for Families

An evidence-based guide to recognising eating disorders in young people, NICE-aligned specialist assessment, psychological therapies, and physical stabilization.

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14 min read

Discovering or suspecting that your child or teenager is struggling with an eating disorder can be deeply distressing. It is vital to understand that eating disorders are complex, severe mental health conditions, not a lifestyle choice, a phase, or a cry for attention.

Eating disorders are characterized by severely disturbed eating behaviors, accompanied by distressing thoughts and emotions regarding weight, body shape, and food. They can affect children and young people of any gender, age, weight, or background.

Importantly, a young person does not need to look severely emaciated to have a dangerous eating disorder; serious medical complications can occur at any body weight. Early identification and rapid access to evidence-based specialist treatment are the most critical factors for a full and lasting recovery.

Common Types of Eating Disorders

Eating disorders can present in several distinct ways, though it is common for a young person's symptoms to shift between these categories over time:

  • Anorexia Nervosa: Characterized by persistent restriction of food intake, leading to a significantly low body weight (or a lack of expected growth and weight gain in growing children). It involves an intense fear of gaining weight or becoming fat, alongside a distorted perception of one's own body shape or weight.
  • Bulimia Nervosa: Involves cycles of eating large quantities of food in a short period (binge eating), accompanied by a profound sense of a loss of control. This is followed by compensatory behaviors intended to prevent weight gain, such as self-induced vomiting, misusing laxatives, or excessive, compulsive exercising.
  • Binge Eating Disorder (BED): Characterized by recurrent episodes of binge eating without the regular compensatory behaviors seen in bulimia. Young people often experience deep shame, distress, and guilt during and after an episode.
  • Avoidant/Restrictive Food Intake Disorder (ARFID): Distinct from other eating disorders, ARFID does not involve distress about body shape or weight. Instead, food avoidance or restriction is driven by sensory sensitivities (textures, smells), a fear of negative consequences (such as choking or vomiting), or a general lack of interest in eating. It can lead to severe nutritional deficiencies and faltering growth.

The Specialist Assessment and Diagnosis Pathway

According to the National Institute for Health and Care Excellence (NICE) guidelines, if an eating disorder is suspected, a GP or school professional should refer the young person directly to a specialist community-based eating disorder service for children and young people.

A specialist assessment is highly thorough and safe, focusing on both physical and psychological well-being:

  • The Clinical Interview: Specialists will talk sensitively with the young person and their parents/carers—both together and separately—to understand their history, eating habits, obsessive thoughts, and emotional distress.
  • Physical Health Check: Eating disorders place severe strain on a developing body. The team will assess baseline physical parameters, including height, weight, blood pressure, heart rate, peripheral circulation (checking for cold hands/feet), and temperature.
  • Safety Screening: Blood tests are routinely performed to check for electrolyte imbalances, kidney function, and full blood counts. An electrocardiogram (ECG) may be required to monitor heart rhythm if there are indicators of cardiovascular strain.
  • Co-existing Conditions: The team will screen for overlapping mental health conditions, such as anxiety, depression, OCD, or neurodivergent profiles (such as autism, which is frequently linked with restrictive eating and ARFID).

Evidence-Based Treatment Plans

NICE guidelines prioritize specialized psychological therapies as the absolute first-line treatment for eating disorders in children and young people.

1. Psychological Therapies for Anorexia Nervosa

  • Anorexia-Focused Family Therapy (FT-AN): This is the gold-standard, first-line treatment recommended by NICE. FT-AN views the family not as the cause of the illness, but as the primary resource for recovery. Therapists work closely with parents, empowering them to sensitively take control of their child's nutrition and meal planning at home, gradually restoring the child's independent eating as recovery progresses.
  • Individual Cognitive Behavioral Therapy (CBT-ED): Considered if family therapy is not suitable or acceptable to the young person. CBT-ED is tailored specifically to eating disorders, helping the young person identify and rewrite perfectionist thought patterns, body image distortions, and dietary rules.
  • Adolescent Focused Therapy (AFT): An alternative individual therapy focusing on the young person's emotional development, self-esteem, and navigating independence, while exploring how these factors relate to their eating behaviors.

2. Psychological Therapies for Bulimia Nervosa and Binge Eating

  • Bulimia-Focused Family Therapy (FT-BN): Similar to family therapy for anorexia, this empowers parents to support their teenager in establishing a regular, predictable eating pattern and breaking the cycle of bingeing and purging.
  • CBT-ED for Bulimia or Binge Eating: A highly structured, individual therapy that utilizes self-monitoring, regular eating schedules, and cognitive behavioral tools to target the underlying triggers of binge episodes and compensatory behaviors.

Pharmacological Treatment: Medication Choices

Medication is approached with extreme caution in pediatric eating disorder care and is rarely used as a standalone treatment.

  • No Routine Prescribing: NICE guidelines state that medication should not be offered as a primary or routine treatment for anorexia nervosa, bulimia nervosa, or binge eating disorder in children and young people.
  • Managing Co-existing Conditions: When medication is introduced, it is typically prescribed by a child psychiatrist to treat severe, co-existing mental health conditions—such as severe depression or obsessive-compulsive disorder (OCD)—that are actively blocking the young person from engaging in psychological therapy.
  • Common Choices: In these select instances, low-dose Selective Serotonin Reuptake Inhibitors (SSRIs), such as Fluoxetine, may be considered for adolescents, provided they are medically stable and closely monitored.

Physical Stabilization and Medical Monitoring

Because severe eating disorders can cause rapid, life-threatening physical decline, rigorous medical monitoring is maintained throughout treatment.

  • Regular Monitoring: The specialist team or primary care GP will conduct ongoing checks of blood pressure, heart rate, and weight to ensure the young person's physical safety.
  • Preventing Refeeding Syndrome: When a severely malnourished young person begins re-introducing food, their metabolism can experience a dangerous shift in fluid and electrolytes known as refeeding syndrome. In high-risk cases, nutritional restoration must be guided by highly specific medical protocols, often involving early blood tests to track phosphate, magnesium, and potassium levels.
  • Hospital Admission Protocol: The vast majority of young people are treated safely in the community. However, if a child's physical health drops to a critical level (e.g., severe dehydration, dangerously low heart rate, or complete medical instability), a temporary admission to a pediatric ward or a specialist adolescent inpatient eating disorder unit may be required solely to stabilize their physical health.

Advice for Parents and Carers

  • Separate the Illness From Your Child: It can help to view the eating disorder as an external force controlling your child's behavior. When they become angry or argumentative about food, remind yourself that it is the illness talking, not your child.
  • Avoid Commenting on Appearance: Refrain from commenting on their weight, shape, or appearance, even if you intend it as a compliment (e.g., saying "You look healthy" can often be misinterpreted by the eating disorder as "You have gained weight"). Focus your praise entirely on their personality, courage, and achievements outside of food.
  • Create Calm Mealtimes: Establish a unified front with other caregivers. Keep mealtimes highly structured, neutral, and free from arguments or negotiations about food. Avoid talking about diets, calories, or weight at the dinner table.